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I’m baaaaack

I took a break from this blog.

The break turned into a hiatus. The hiatus to an absence. And now, here I am – more than two years since the last helping from the Brainfood Cafe.

The point of the break-hiatus-absence was to focus my writing on finishing my book – the tale of an average fella who one day wakes up dazed and confused with a misfiring melon.  As you may recall from past blogs, it turns out that this fella – me – had a stroke, losing the ability to read, write and do arithmetic. My memory was shot and much of my cognitive skills were set back 40 years or so. Not too good as I was 45 when the stroke struck.

Me, my lady & my girls.

I figured finishing the book would take a few weeks. Maybe two or three months.

As well as I’ve recovered from the stroke, my math must still not be too great ‘cause I didn’t put a bow on the book until the summer. This past summer — 2020 COVID-19 Summer.

Why so long?

Because it was damn hard. Re-living the worst months of my existence took an emotional toll and required regular stoppages to reset my mind and rest my soul. And I had to get the writing right. Hemmingway said writing is easy, just sit down at the typewriter and bleed. There’s even more bloodletting when what you’re writing about is so personal. In the book I write about demons that haunted me as I fought to recover. Those demons also struck me as I wrote, making me question my words and my recovery.

But I finished.

And that felt great. My life’s goal was to write books, which is why I became a newspaper reporter way back when. It made sense at the time, but that trade left me with a lot of good ideas and partially thought-out beginnings. After career changes and years of starts and stops with my writing, along came the stroke, wiping away my ability to read and write and presumably putting a definitive end to my dream.

But now the dream is reality (I hate when cliches fit).

I’ll never forget the morning early this past June when I stopped typing, re-read what I’d just finished and realized that this was it with the book. I’d tied the yarn together, it was complete. At least complete enough to get it out in front of other sets of eyeballs.  My bride, Patricia, had a final read for me with some suggestions. Then I reached out to writer friends of mine about agents and advice on the path to publishing. I got some great feedback and advice.

Edmonton writer Wayne Arthurson (The Traitors of Camp 133, Fall From Grace, The Red Chesterfield) gave my yarn a spin and suggested an epilogue. That was a brilliant idea. Then it turned out that Wayne is also working as a successful agent. We shook hands electronically and Wayne is now shopping my book around.

I’ve been warned about how hard it is to get a book published. Told not to get my hopes up. Cautioned how difficult it is even to get a good publisher to just read a synopsis. But so far, Wayne has managed to get these folks to take notice.  I’ve even had the most inspiring rejection that I could ever imagine from a major publisher.

“Tim writes with poise and emotion (not surprising given the ordeal he’s been through!) and I feel he has a good voice here, and a sense of what he wants to convey.”

This publisher feels that my book isn’t the right fit for his company, but also believes that it is worthy of seeing the light of day in book stores.  I’ll take that – for now.

 At last count, five publishers are considering my yarn. It really feels like this thing will be hitting store shelves and e-readers sooner or later.

So, with that happening, I figured, the extended Brainfood hiatus is over.  I can take you all on the journey with me as I wait for news on a publisher, write about the talks I’m preparing to start giving again and share with you the new writing I’m working on. Oh, and you’ll also get the scoop when a publishing deal is (is, not if it is) struck.

The other inspiration for getting back on the blog horse is the milestone I hit while we were all dealing with the new Covid-19 realities. March 15 marked 10 years since my mind was sizzled by the stroke. My plan had been to celebrate that day with a book on store shelves and an incredible trip somewhere. I didn’t finish writing in time for that and the Coronavirus killed the dream of sipping Corona beer on a warm beach, in any case.

So, while I put all that on hold, I want to get back to writing stories that inspire stroke survivors, and the people who love them. Stories about different paths to recovery and to great new normals that can be even better than before. Like, for instance, writing a book after a stroke wiped out your ability to read and right 😊.

I also want to write more about the big beautiful brains we all have and explore with readers how to get the most out of them, how to treat them with the love and kindness that will keep them firing on all cylinders. And that can maybe coax just a bit more brain power out of ‘em, too.

All of this is what you can expect in future helpings of Brainfood.

Stay tuned!

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RIP John Le Carre

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Technology & research are key helpings of brain food

I always talk, think and write about being back to normal. After a stroke, that’s what a fella wants. Normal = good. You want to blend in. At least for me, there’s still a fear that somebody will notice a slight hesitation in my speech or catch me struggling to retrieve a memory. If a regular Joe or Jane forgets a name it’s just a sign of a busy life. If someone whose brain has been sizzled does the same, could it be a sign that they aren’t firing on all cylinders? Are they damaged goods? Are they capable? Do they require pity? Arggg! I imagine it’s much the same for folks who’ve suffered other assaults on their minds. The fact is though, that you’re never the same after your brain has been blitzkrieged. The difference can be in how you feel, how you function or both. It doesn’t mean that you’re not capable. But it might mean that you need some help or tools to do what you used to do. Imagine if a mind like Stephen Hawking’s was trapped inside his disability? What if he was born in a time and place where sharing his mind with the world wasn’t possible? Or if his part of the world had been cut off from the possibilities that helped set his brain free? I fear that that could be happening today. I’m actually pretty sure that it is. I’m certainly not in Hawking’s league. But whatever I have to offer would be largely muted without the help of technology. As I’ve written before, even the healed Tim Seefeldt’s reading speed is just over 50 words per minute. An average person reads at between 150 and 190 words per minute. You can’t do the work I’ve done through my career without being able to read and write. And, you sure can’t write without being able to read. Or to find a cheat. It doesn’t take a mind like Hawking’s to figure out that I’d be up the creek without a little help. More than a little. My equalizer is software originally designed for kids with learning disabilities called WordQ. WordQ literally allows me to keep up to the rest of you in reading the reams of material that comes across my computer each day. It allows me to edit my own writing to make sure that it’s up to snuff. I use it to edit and review everything I spit out, with the exception of very short emails. Bottom line is, without it, I don’t make a living the way I’ve been trained to make a living and I’m in a spot of bother when it comes to paying the bills. And, there’s no book (BTW, agents/publishers I’m still waiting to hear from you!) and there’s no blog. Beyond the practical, a large part of me would be gone without being able to write. Technology is a game changer for many of us in regular day to day life. And it can be especially critical for those of us who’ve suffered a few bumps along the way.  It’s not just high tech tools that can help heal damage and improve brain function for the unbroken, either. I’d also like to be a clearing house of ideas for stuff that’s working for folks whether it’s some form of physical exercise or meditation.  Personally, I wouldn’t have gotten anywhere without the spiritual piece. And today, a big part of my day to day is yoga. My downward facing dog looks more like a rat, but it’s helped me a lot, from shoulders to toes and between the ears. The thing is, there’s so much out there and things change so quickly that it’s virtually impossible to keep up to speed without help. And to separate the good, the bad and the ugly. So, in that spirit, here are a few things readers have mentioned. What do you think? Some American readers have noted the work done by Bioness Inc. Their electrical stimulation devices are being used to help people with arm and leg mobility issues. Their stuff is aimed at helping folks with foot drop or hand paralysis as a result of stroke, multiple sclerosis, traumatic brain injury, incomplete spinal cord injury or cerebral palsy. I’d love to hear from more folks who’ve used this and to see if there are other tools targeting these issues. I’ve also heard from readers who’ve read about potential benefits of hyperbaric oxygen therapy for those suffering ischaemic strokes. This one’s right out of left field for me. Are there any professional readers who can shed some light? Let’s try to work as a clearing house of sorts for some of the stuff that’s out there for stroke survivors and those suffering other brain trauma. Also for brain health. The way I understand it, it’s never too late to start trying to make the ole ticker work better. As well, the thinking that the clock was ticking after a stroke and that you could only make improvements within a short window of time is now, I believe, considered bunk. I’ll be waiting to hear from you. Meantime, I’m also waiting to hear from a concussion expert. I’m expecting some pretty interesting stuff to share with you on this front soon. -30-

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Brain health clearing house

It’s been a couple of weeks since my last blog, but I’m back with a different state of mind.

Some travel set me behind. Then, interviews I was planning for a few posts on concussions were delayed. I didn’t want to just tell my story all of the time. I felt I’d hit a wall. And it was compounded by that personal issue I wrote about a few blogs back.

Then I got an email from fellow ex-reporter, Ron, that set my mind right.

Ron’s wife had a stroke 18 months ago. He’s by her side at their home just outside of Charlotte, North Carolina. Ron read about my story while doing some research on the National Stroke Association’s website (http://www.stroke.org/) where I’d posted a piece on their ‘faces of stroke’ page.  He tracked me down.  Reporters, even us ex-reporters, are good at this stuff.  Now two ex-newspaper guys — one from the South Eastern US and one from Western Canada – were connected.

Reporters — again, even us ex-reporters — are also good at asking questions. And in his emails to me, Ron asked a lot of good questions about life after stroke and support, tools and the like that are out there for recovery. He made some excellent points, like the ‘facts’ on the time after stroke that a person can still make gains seems to be greater than the experts used to think.

I realized from his questions that I’d forgotten one important thing about my recovery. As much as we now know about stroke, we’re still at the early stages of understanding the brain. New ideas are being floated every day. And advances and aids for stroke victims – and those suffering other brain conditions and injuries – are being made and discovered all of the time. And it’s happening all around the world. The point is, if you suffer a stroke or a brain injury in Vancouver or Miami or anywhere in between, all of the brain power you’ll need to help you isn’t sitting in a neat package in one convenient spot. You’ve got to do some digging.

As I’ve written, I had amazing care in Edmonton. And still, I learned about the reading feature in the Amazon Kindle through a speech language pathologist I connected with in Chicago. In our conversation, I told her how I was getting books from the library, then finding the same book on CD. I’d play the CD while following the words in the book. As I’ve said in earlier blogs, I can ‘read’ along with words being read out loud at normal speed, but I slow down dramatically when the recorded voice is shut off. Letter combinations don’t immediately appear to me as they do to you.  But they do when I hear the word along with seeing it. Weird, I know. At first I used this technique to speed up my reading. I seem to have hit a wall with speed, so now I need help just to keep up with the rest of you and not spend a frustrating month reading a short book.

The Chicago speech language pathologist asked me why I didn’t just get a Kindle, which has a feature where a computerized voice reads out loud, allowing me to follow. I’d not heard of this before. What a breakthrough that was for me.

I also craved having someone like me to confab with who understood exactly what I was going through with my lost words. Nobody I met or heard about had my reading issues. Then, by chance, I spotted a documentary featuring Oliver Sacks, the UK born, American based writer/neurologist who suffers a unique brain issue himself. The special talked about a Canadian novelist who had a stroke and lost the ability to read. His circumstances were different, but still. I tracked Howard Engel down and had some great, helpful and inspiring telephone conversations with him.

These were watershed moments for me. Colossal breakthroughs, huge inspiration.

Ron reminded me that I can use this blog to help spark some breakthroughs for others who’ve suffered stroke and brain injuries. To provide a voice for those who’ve come up with devices, tools and techniques to help with brain function and improvement. Whether it’s help for those of us who’ve been buzzed or those trying to fight off decay.

So, please, reach out to me with what you know and what you have. Share research you’re working on or have heard/read about.  I’ll share them in this blog. I’ll dig into them and do some old fashioned reporting on them.  I’ll spiderwep from your ideas and tips and dig up more exciting and helpful stuff.

Ron’s already started me with some great ideas you’ll read about soon.

Thanks, Ron!

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